Blinded by the LIGHT...

Friends and Family...

This cancer journey is not easy - especially when I am so in love with THIS life and all of you. Trying to learn how to embrace all the transitions. Gratefully, I am not in any pain but lepto menegeal disease hijacks the nervous system and it has made quick progress this last week on my vision. I can see out of each eye individually, but the central nerve that coordinates the two eyes is not working. Good thing I like pirates!!

I am headed to University of Washington this week to set up for whole brain radiation treatment. I have been directed by very smart doctors who say that this special proton therapy is showing hope for lepto meningeal disease. I switched interthecal therapies last week and it seems like some progress is happening (lower cell count in the Cerebral Spinal Fluid), which is what I understand is complicating my vision.

My dear friend Chace sent such a beautiful note (see below) asking people to put in good vibes and love for me during this time. I think I'm ready for it - please send love, positive energies and miracles my way.

Also sharing a beautiful tribute that my girls sang to me over the weekend. I love the verse - "you never quit a day in all your life"! And I will never quit filling my heart with gratitude and love for every minute of this beautiful life.

Thank you for all the sweet texts and messages. I’m sorry that I am not quick to respond just very overloaded and now visually challenged with everything! But I appreciate it and love you all.